Thursday, June 23, 2011

Just snap them off for a bit…PLEASE!!!

By Nancy Ester-Sager

That’s my lifetime plea, but of course I know I can't just snap off my legs. If I did, I'd probably misplace them. I must have been meant to do something with them, or they wouldn't be mine.

They are mine!! They hurt. They fight me, and I would never trade them.

Up until recently, I have felt like I belong (or didn't belong) in two different worlds, the disabled world, and the normal world. Now I realize I am in the right world, it’s not like anybody else's. It’s just mine, and it's the exactly where I need to be.

I have a condition called Myotonic Muscular Dystrophy. At first glance, I don't look like I have anything wrong, but very few muscles in my body have the ability to ever fully relax. I have often become dizzy from the pain that it causes me. I can get very stiff and have difficulty getting my brain and my body to work together. I prefer to think of myself and my body as two different things, because that is exactly what they are.